Tag Archives: meds

And I know its gonna be A lovely day

Mornings are my nemesis, always have been. I am a night owl through and through, from writing uni essays at 1am, to all the years I spent working in the club industry and the long night shifts as a criminal defense solicitor attending police stations to see clients. I long to be up and at ’em at 5am, doing my sun salutations and journalling or whatever I would do with all the extra time, maybe taking over the world. Though of course I would be so exhausted by 12noon that I would need a lie down but that sort of stuff is frowned upon at my work place. My mum, on the other hand, literally wakes up singing, it irritates me beyond belief. The mornings are for the radio, coffee and NO talking.

I have read lots of blog posts about how to have a better morning, which in turn leads to a better day, and I have really tried to implement the things that I think would work for me and my lifestyle – single mum, chronic illness, commute to London, full time job.  I read a very amusing post recently titled how to get up when your alarm goes off and not hit the snooze button, I scrolled down and it literally said – alarm goes off, you get up, done! Made me laugh. None of this setting your alarm an hour earlier than necessary to facilitate the endless snooze button pressing. My uni friend Caroline reminded me recently that I used to have to put my alarm clock on the other side of my room as when it was next to my bed I had been known to turn it off in the fog of tiredness and go straight back to sleep missing my lectures.  So I have started just not pressing the snooze button, believe me I want to but compared to the anxiety of rushing around fearing being later for work, resisting the urge is worth it.

IMG_3040

I make sure my coffee machine is good to go the night before, fill it with water, clean the milk frother out, who wants to be scrabbling around washing up at 5.30am before your first cup of coffee? And that even if the kitchen is a bomb site then I have at least one cup available. I also make sure that any containers I need for lunch are clean. This next one is for those of us who take loads of meds, or who takes loads of supplements. Instead of popping out the 26 tablets I take each morning and risk making a mistake or missing some, I prepare a dosset box every Saturday morning that lasts 7 days. Basically I have two boxes, split into seven compartments and labelled Saturday to Friday and I fill each one with the days tablets so in the morning I just flip open the relevant day lid and into my mouth goes my pills.

I usually have a big glass of green juice first thing as food makes me feel nauseous. A green apple, 1/3 cucumber, small head broccoli, half thumb fresh ginger, half peeled lemon, half head fennel, 2 sticks celery. But I am lazy and have no intention of peeling, cutting etc first thing so I make up portioned bags of the veg three days at a time so I just grab a bag out of fridge, shove it into juicer and bang, breakfast.

I have also spent many a morning searching for my f***ing keys, as I fondly refer to them. So, as simple as it sounds, I now leave them in a bowl on my dining room bookcase, it is their home. As soon as I walk in the door there they go to rest until I need them in the morning.

See, nothing earth shattering, nothing new, but things that mean I don’t start my day in a right grump. So even if the rest of the day is not a super success, after all I can’t control everything, then at least I know my morning started as well as it could have.

We’re not broken just bent

So, I got my fibromyalgia diagnosis earlier this year when things were just awful health wise and it has been with me ever since. I have done a lot of research, spoken to lots of doctors, sought advice from social media and this is what I have learnt;

Fibromyalgia is a disease that affects the central nervous system.

There is no cure.

The main symptoms that I personally experience are exhasution, chronic pain, joint swelling, insomnia and brain fog.

The pain never goes away.

Powering on through the tiredness is not the thing to do.

If I rest for a few hours in between tasks I can get things done.

I have a full time job and cannot rest between tasks.

I have a small child   – see above about rest.

I am a single mum – see above about rest.

I am doing a phd – see above about rest.

I rarely get very much done.

Orange juice makes the swelling and pain worse.

Refined sugar makes me hurt and bloats me up.

Aromatherapy oils in my vaporiser and massaged onto my painful bits really helps.

Dry heat helps (another holiday to Grenada for health purposes?……).

I am allergic to lots of pain meds.

I feel very guitly abut not being able to do simple things.

I feel like a failure as a mother and as a friend and as a girlfriend.

I have to cancel plans at the last minute because I just cant manage to do them.

I have stopped making plans.